Who we are

“When receiving the diagnosis, so many questions come to mind. We can’t imagine that researchers
are already looking for answers, and that there is hope…and we will do everything to transform this hope into reality.”

Caroline Covini, Vice-president

“When receiving the diagnosis, so many questions come to mind. We can’t imagine that researchers
are already looking for answers, and that there is hope…and we will do everything to transform this hope into reality.”

Caroline Covini, Vice-president

Our members

David Covini

President

Responsible for Research

Father of Matteo (2018) with MECP2 duplication and Nyssa (2015)

Researcher in the pharmaceutical industry (Austria)

Caroline Covini

Vice president

Responsible for Research

Mother of Matteo (2018) with MECP2 duplication and Nyssa (2015)

Researcher in the pharmaceutical industry (Austria)

Gerald__

Gerald Molnar

Accounting

Father of Philipp (1997) with MECP2 duplication and Susanne (1990)

Retired factory manager (Austria)

Susanne

Susanne Molnar

Vice-accounting

Mother of Philipp (1997) with MECP2 duplication and Susanne (1990)

Commercial employee (Austria)

Ana

Ana Curic

Secretary

Mother of Jan (2020) with MECP2 duplication und Theo (2017)

Expedition employee (Austria)

Boris

Borislav Curic

Vice-secretary

Father of Jan (2020) with MECP2 duplication und Theo (2017)

Teamleader (Austria)

Suzanne Ertl

Susanne Ertl

Ambassador in Austria & Account Auditor

Gersohn Sasha

Sasha Gersohn

Ambassador in Australia

Mother of Zac (2022) with MECP2 duplication syndrome

Agnieszka

Agnieszka

Ambassador in Poland

Mother of Kacper (2020) with MECP2 duplication syndrome

Jasmin

Jasmin Henrich

Ambassador in Germany

Mother of Leon (2019) with MECP2 duplication syndrome

Jeannine

Jeannine Prokop

Ambassador in Austria

Mother of Ben (2022) with MECP2 duplication syndrome

Paola

Paola Forero Cortes

Ambassador in Switzerland, Spain & South America - Spanish translator

Researcher (Switzerland)

Livia

Livia

Ambassador in Slovakia

Mother of Leonard (2020) with MECP2 duplication syndrome

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Panos

Ambassador in Greece

Mother of Lukas (2011) with MECP2 duplication syndrome

Dr. Gudrun Gröppel

Neuropeditrician MDS Specialist

Hilde

Prof. Hilde Van Esch

Clinical geneticist

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Thomas Rückle

Scientist- Drug development expert

Our MECP2 children

Our history

The other associations

We are here for you

Do not hesitate to contact us and join our fight!