This holiday season, let’s make it a wonderful time by helping others!
At DupMECP2, we are dedicated to supporting children with MECP2 and their families the best we can and all year round.
MECP2 Duplication Syndrome is a rare and devastating syndrome. Our team works tirelessly to raise awareness of rare genetic disorders, demystify research, and provide families with the resources and support they need.
But we can’t do what we do alone! We need your help!
Last year, with the help of our members, staff, family, and friends, we were able to bring you countless events, activities, and materials that helped raise awareness for MECP2 Duplication Syndrome.
With your help in 2024, we were able to create a two-part webinar about the ATTUNE study, giving families and caregivers valuable information.
This resource’s goal was to offer clear, accessible information about the clinical trials that will soon start and help families prepare for the future. We were also very proud to be able to help financially families to support costs for expensive therapies and medical devices.
How can you help?
This year, you can make a difference in a truly meaningful way. We invite you to join us making dreams come true, this holiday season. Show your support to our missions by decorating our virtual Christmas tree.
Every single light on the tree, lights up our hopes, shows your support and allows us to make a difference for our little heroes.
By decorating our virtual Christmas tree, you can help the lives of children and families. Every ornament placed on the tree helps us:
- Supporting families by providing information and updates, as well as supporting costs of therapies
- Raising awareness of MECP2 duplication syndrome and rare genetic disorder
- Accelerate research of a ground breaking technologies to find a cure
How does it work?
- Visit our virtual Christmas tree.
- Choose one or more stars or ornaments.
- Leave a xmas wish and upload a photo to personalize your message on our tree (Optional)
- Share the link with your friends to amplify your good action and create a cascade.