Rare disease run 2025

We are delighted to share the great success of the Rare Disease Run 2025! For this fourth edition, thanks to our amazing participants, donors, and supporters, we raised a total of €41,600 for 33 organizations fighting rare diseases.

Of this amount, €750 was donated directly to our association. These funds will greatly contribute to our mission of supporting families affected by MECP2 gene duplication syndrome. These funds will go a long way in supporting our mission to help families affected by MECP2 Duplication Syndrome.

This year's event was a celebration of solidarity, as runners, walkers, and supporters came together for a common cause. A huge thank you to each and every one of you!

We also want to extend our appreciation to the organizers of the Rare Disease Run, whose dedication, hard work, and commitment to making this event a success is invaluable. Their tireless efforts ensure that these types of events continue to raise awareness and funds for rare diseases, like MECP2 Duplication Syndrome, which so often go unnoticed.

Looking ahead, we are already excited for next year and can't wait to join forces with all of you again in 2026. Together, we are stronger — and together, we will continue to make a meaningful difference in the lives of those affected by rare diseases.

Let’s keep moving forward — for rare diseases and for a better tomorrow.