We are proud to be one of 44 rare disease patient organisations and advocacy groups in Germany and Austria to once again unite [...].

On 14 June, a day of cycling will take place in Gramatneusiedl (Lower Austria, near Vienna) between 9am and 12pm. As part of this event, we can [...]

This important event will enable MECP2 gene duplication syndrome specialists, scientists and families to meet and discuss current developments in the field of gene therapy.