We invite you to attend the Camerata Carnuntum Christmas concert at Café Im Wittnerhof (Lower Austria). All proceeds from the event will be donated to the charity. Please note that tickets are [...]
We are proud to be one of 11 new rare disease patient organisations and advocacy groups in Germany and Austria to join the [...].
On 25 May, a day of cycling will take place in Gramatneusiedl (Lower Austria, near Vienna) between 9am and 12pm. As part of this event, we can [...]
Once again this year, MECP2 duplication UK will be hosting the MDS Family Day in Manchester on Saturday 8 November 2025. The meeting will be held at the DoubleTree Hilton Hotel [...].
On 15 and 16 November, we'll once again be staging our punch stand in Gramatneusiedl. With delicious mulled wine and culinary specialities, we will once again be [...]
On Saturday 20 December, from 5pm, we'll be running a coffee/cake stall in the Gramatneusiedl community centre. As part of this much-loved tradition, based on the theme [...]
We are proud to be one of 44 rare disease patient organisations and advocacy groups in Germany and Austria to once again unite [...].
This important event will enable MECP2 gene duplication syndrome specialists, scientists and families to meet and discuss current developments in the field of gene therapy.
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