Written by Ana, Jan’s mom Dear readers,Today I would like to tell you about our positive experience at the Adeli
Written by Micki, Luzia’s mom Luzia is an extraordinary child. She has an unbalanced translocation between two chromosomes, a condition
Written by Jeannine, Ben’s mom This year, Ben’s rehabilitation took place in May at Kokon Rohrbach-Berg in Upper Austria. This
Written by Jasmin, Leon’s mom Leon is 5 years old and lives in Germany. Last May, he has had the
Although there is currently no treatment for MECP2 duplication syndrome, daily training remains highly important to address the symptoms and
“Die ganze Woche”, an austrian newspaper, visited the Curic family. Jan’s mom bravely shared her story with MECP2 Duplication Syndrome.
A day in the life of a family of four with MECP2 Duplication syndrome (written by Sasha Gersohn) Waking up
