Medias
Insight into life with MECP2 duplication syndrome
“Die ganze Woche”, an austrian newspaper, visited the Curic family. Jan’s mom bravely shared her story with MECP2 Duplication Syndrome.
“Die ganze Woche”, an austrian newspaper, visited the Curic family. Jan’s mom bravely shared her story with MECP2 Duplication Syndrome.
Servus Nachbar featured the association as part of the bike tour organized by the city of Gramatneusiedl. Find the article
Within the bike tour was organized by the city of Gramatneusiedl, our association “Lasst uns MDS heilen” was allowed to
Matteo with MECP2 duplication syndrome was featured in the Kronen Zeitung, an Austrian newspaper (by Anja Richter). Find the translation
Matteo, a carrier of the MECP2 duplication syndrome, and his family speak about their journey towards the diagnosis in a