It is with great joy and enthusiasm that we are releasing our very first newsletter. At the heart of our association lies a profound commitment to raising awareness and supporting those affected by MECP2 Duplication Syndrome, a rare genetic disorder that touches the lives of many.
In these pages, you will find a wealth of information, stories, and updates that we believe will resonate deeply with our community. This newsletter is not just a collection of words; it’s a reflection of the love, strength, and unity that binds us together.
Within these digital pages, you’ll learn about:
• The association
• Research projects
• Past and future events
• Our heroes
Thank you for being a part of our community, and we look forward to embarking on this journey of discovery, support, and unity with you.
P.S. Don’t hesitate to reach out to us with your feedback, stories, or suggestions. Your voice matters, and we are here to listen and support you every step of the way.
